Category Archives: occupational therapy

Signals to the brain..more on Occupational Therapy

 

 

 

vestibular system

 

 

 

junior seat wedgeWe have recently moved to a new Occupational Therapist centre as his previous OT was marvellous but just didn’t have the space to accommodate what Harry needed at 3.

www.sensationalkids.com.au

Today his therapist spent time with him working on his back extenders to build his core. Muscle tone is still a big concern with Harry,  sitting still for long periods of time is not possible  without him slumping and we recently purchased a great cushion which assists him to hold is core muscles in and sit upright without slouching. It also has a series of nodules which serve to stimulate the preproreceptors and let him have extra feedback through his sitting muscles.

 
 

http://www.senseabilities.com.au/products/item.cgi?cid=cid&pid=389

 

 
In contrast to the senses of vision and audition which can easily be understood by simply shutting our eyes or plugging our ears, the significance of vestibular function in our daily lives is more difficult to appreciate. When the system is functioning normally, we are usually unaware of a distinct sensation arising from vestibular activity since it is integrated with visual, proprioceptive and other sensory information such that combined experience leads to a sense of motion.

Check out the videos below showing what Harry does in his OT sessions to assist with his vestibular systems ability to compensate for its deficiency and   all this is going on in the background whilst his language has developed over the last 2 years.

 

 Password protected videos use the password:harry2011

Harry at occupational therapy August 2014 from Hollie Feller on Vimeo.

Occupational therapy. Aug 2014 from Hollie Feller on Vimeo.

Testing Harry’s knowledge of colours and ability to listen to instructions whilst working the vestibular system and core.

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Filed under Bilateralism, cochlear implants for kids, Deafness, Hearing impairment, listening skills, occupational therapy, sensory integration

Harry 33 mths: gymnastics for balance

Gymnastics classes on a Friday morning are a great way to get Harry to work on his vestibular system as recommended by our OT. Last week it was themed for the Australian Grand Prix annually held here in Melbourne.
He had such a ball and practiced this racing track circuit most of the session until he could manage it without toppling over- what perseverance my son has…..

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Filed under cochlear implants for kids, Deafness, occupational therapy, sensory integration

OT, ST…Occupational therapy and Speech therapy start

ot signOT images

Despite all my efforts to find a “label” to apply to Harry’s delayed motor skills, I can’t seem to find one.    It is not a common issue; he is one in 20,000 with a congenital profound hearing loss, and even less has issues with balance.  It appears that it is a “bi-product”(and that is my own term) of his Deafness.

As you can imagine Readers, having followed this journey for the last year, I have discussed this need for a box or label with which to understand his issue with a number of Specialists- from our ENT, our Paediatrician to our Physiotherapist. But no-one seems to know exactly why Harry has these delays and he is struggling at the moment to stand on his own.

One consistent comment that has emerged through these discussions is that Harry is unable to work out where his body is in space. He requires a lot of sensory input to let his brain know that he is standing, the ground is beneath him and he can move up or sideways or go straight ahead in this space.

Our Physio appointments were only monthly and in between it was up to me to make things happen. It was only Physio that was trying to assist with his gross motor skills. It is like that with everything though- really the parents are the key to the child’s success. What you put in, they get out! I was trying as hard as I could but really everyone was waiting for it to just click into place for him.

OT clip art

So we have been bumbling along since January with Harry cruising around, and slowly getting more confident, but never really being able to go on his own as he couldn’t stand.  Every time he stopped he fell, either on his face or onto a vertical surface he could lean against.

He never starts from standing- he begins his walking experience by leaning against a person or a surface and then launches from there. And this is how he stops. There has to be something there to break his fall. He has not mastered the STOP by STANDING.

This is still where we are at the end of April. So between me, the Physio and the Paediatrician, we decided the only therapy we hadn’t really looked at for this issue was Occupational Therapy. I know nothing about this field. The Physio warned me I might find it “woolly” but quite frankly so was Physio. I was recommended a particular practice not far from home and set about to get Harry started. It took nearly 4 weeks for them to find a therapist that was experienced enough to tackle Harry’s issues. I now know why, as in between I randomly surfed the Web to see who else in Melbourne may have had experience with hearing issues and balance in Kids, phoned around and dragged us all off to see what they had to say. I spend endless nights drawling through reports on the Web about sensory issues and most notably Sensory Integration Disorder. It was the only thing that seemed to be close to what Harry was experiencing. It talked about the use of Occupational Therapy to assist with kids who couldn’t work out where their body was in space. It was not easy reading, as there were a lot of other social issues linked to this disorder, which Harry wasn’t displaying.

Did that mean they were to come- was there still more to unravel? I don’t think so. I think it was an exercise in learning not to self-diagnose.  It can be really soul destroying and ultimately damaging to all the work you have put in thus far.

The story ends well. I have  found a lovely lady who is an OT and has worked with kids with hearing impairments and she seems to know what she is talking about. She spent nearly 2 hours with us on the first visit to assess what may be the cause of Harry’s lack of equilibrium. In that 2 hours Harry had moments of walking without a wobble and it was enlightening for me. By the time I came to see the OT I was at rock bottom. I had convinced myself Harry was suffering from any number of disorders and was not making enough progress. I guess this is what comes of seeing so many Professionals- conflicting advice and opinions, when actually most of them, like us, don’t always know “Why” something is not clicking.

She then requested that we line our hallway , which Harry had stopped attempting to walk down, with rubber mats. The hallway was a means to get around most the house and he either crawled or pushed an object to get down it. When we tried to get him to walk down it alone he belted his head on the hard Jarrah floor so many times he just stopped trying. And who would blame him. This is because he seems to be missing the basic reflex of putting his hands out to save himself when falling. His head always hit the ground first. And with the delay in walking came enough age( or maturity) to know that it was a painful experience and not worth doing anymore.

password harry2011

I have some video with the mats down in our hallway and Harry’s sheer glee at being able to manoeuvre  himself solo for 12m. The first evening he walked up and back about 15 times just to make sure he wasn’t dreaming. The OT made some other requests which I have been doing and altogether I have seen a vast improvement in his steadiness and confidence over this week.

I will add a page into the Blog under Useful Links all about OT so if you think it might be something useful for you to read then it will be there.  We will be going weekly until our trip to the UK in June and so we will see what happens.

OT room

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Filed under cochlear implants for kids, Hearing impairment, occupational therapy, sensory integration, speech therapy